Sensory Integration
Problems
From an early age, our son fussed about how his shoes felt. They were too
hard. They were laced too tight. They were not laced tight enough. They
were too big. They were too little. If we walked into a busy, noisy mall or
restaurant, he would freak out, bouncing "off the walls", so to speak. He
would become terribly agitated, angry, and uncontrollable. To all
appearances, this was just another demonstration of willful disobedience.
We all came to dread the shopping-for-school-clothes day. I dreamed of
being able to wear an umpire's vest and mask into the dressing room. Jeans
had to be tried on, as invariably they never felt "right". We went through
the entire kid's section trying to find the "right" pair. Taking clothes to
try on at home was not an option, as we would have needed a moving van.
Invariably, we ended up with an angry, agitated, miserable kid. Solutions
were hit or miss, trial and error.
We learned to watch for a pattern of irritable behaviors. We tried to
identify the triggers. We learned to avoid malls at busy times of the year,
after he finally screamed out, "I can't stand the noise." If we walked into
a noisy restaurant and our son headed for the door, we knew that the noise
was actually painful to our son's ears.
Then help arrived in the form of Dockers, and Velcro closures on shoes. We
marveled at the relief our son showed at such simple inventions. Only much
later did I learn about sensory integration disorder.
Many children are irritated by labels in clothing, by overheating, by
feeling too cold, or by certain fabrics. Some children simply cannot handle
any kind of layered clothing. Others may be bothered by certain scents or
any scent at all. Hot may feel cold. Cold may feel hot. A child may go for
a long time without eating, then suddenly be frantic for food. Sometimes
their systems seem to only identify what appear to be extremes.
One of our daughters, has had a lifetime aversion to bright lights. Being
what I considered a responsible parent, I would fuss about how she was
damaging her eye sight if she did not read by a bright light. Now I
understand more damage would have been done if she had followed my advice.
Also, all her life she has had an extreme sensitivity to loud noise. She
has to have the TV or radio on at as low a volume as possible. A radio five
blocks away that no one else really hears causes her distress.
Such sensitivities need to be identified and accommodations made to minimize
their impact. The only real way to do that is to partner with your child,
be sensitive to such sensory issues, identify them through dialogue, and
reduce their impact as much as possible. Just showing your child you care
by inviting such discussion can relieve some of the irritability. For your
child is looking to you for support and help.
If your child has an IEP, consider listing any sensory issues. Compare what
goes on at home with any comparable problem at school. For instance, a
child who becomes overheated while running the home vacuum cleaner may
demonstrate behavior at school resulting from becoming overheated during
gym. Look for the links. Consider asking for accommodations you believe
would reduce the negative impact. Discussing and partnering to identify
sensory problems can make life simpler both at home and at school.
Whether a child has sensory integration disorder, or whether such problems
are part of ADHD, Asperger's Syndrome, autism, or other disorders, is best
left to the experts. But for parents, the important thing is to recognize
such sensitivities are real, are to be respected, and accommodations made
both at home and at school to reduce their impact.
These sensitivities are not necessarily outgrown. They can be with a person
throughout the life span. Our daughter, now grown with her own family, still
lives with dimmed lights, and suffers from heightened sound sensitivity. Our
son totally avoids certain restaurants, and avoids malls. We respect and
accommodate their unique sensory needs.
Judy Bonnell
After reading your article, I realize now that my ex-husband suffered from Sensory Integration Dysfunction. Unfortunately it was never diagnosed. Thanks to your bringing these topics to the forefront, more people can recognize symptoms for their children and other loved ones, and address them appropriately. Thank you for the good work that you do.
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Oh my gosh did this article bring some flashbacks! My son would not wear jeans until he was about 15 or 16 years old. He could only stand to wear sweatpants because the waist bands were too uncomfortable on jeans. Oh and forget about the seam on socks! What an ordeal! My son is now 20 years old and he suffered greatly with auditory stimulation, textures in clothing, was soooo picky about foods (unless it was bean burritos or mac and cheese it was a battle!). I knew he had the auditory, but it wasn't until two years ago when I watched a presentation by an occupational therapist that I realized that my son had extreme sensory issues in 4 different areas. That most of those early temper tantrums and refusals were stemming from his sensory dysfunction. I felt particularly horrified when I heard the therapist talk about how fabrics could feel like sandpaper...fortunately I have a tendency to take the collaborative path, so I found the velcro shoes or slip ons, let him wear sweats and provided a low stimulus-low noise environment. All of which unbeknownst to me were addressing his sensory overload. I wish I had known then that I could have sought out an occupational therapist to work on his sensory issues. It could have possibly helped him along a lot faster. My son seems to have developed some tolerances with age; He can wear jeans and socks,he has added a few more things to his menu,and he can tolerate going to CNM for classes (UNM will take a while). He still avoids busy loud shopping malls like the plague and definitely has homebody tendencies...
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